Patient Information Resources - Breast Cancer Alliance

Patient Information Resources

These local and national organizations provide breast cancer information, counseling, publications, advocacy, support and referral services.

Association of Cancer Online Resources www.acor.org The Association provides information and support to cancer patients and those who take care of them through the creation and maintenance of cancer-related Internet mailing lists, web-based resources, an email forum and a discussion group.

American Cancer Society 800-227-2345 www.cancer.org Website and 24 hour hotline provide information on cancer treatment, early detection, prevention and online services available to cancer patients and their families, including how to talk to children about cancer.

American Life Fund 877-412-0524 www.americanlifefund.com provides cancer financial assistance by assisting late-stage patients with the loan or sale of their life insurance policy for immediate funds. 

American Psychological Oncology Society www.apos-society.org Provides a free helpline to connect patients and families with local counseling services.

American Society for Clinical Oncology (ASCO), People Living with Cancer www.plwc.org Offers educational information for patients and families.

Avva Advocate
avvahealth.com
Avva Advocate is the first comprehensive breast health iPhone app. Any woman following a mammogram screening schedule can use the app to keep track of mammograms and receive regular reminders. It’s free, simple and easy to use, and takes less than a minute to set up. If you’ve been recently diagnosed with breast cancer, Avva Advocate is also here to help. It will guide you through treatment, helping you prepare for doctor’s visits. Avva Advocate will assist you in making a list of questions for your doctor by showing you suggested questions that other patients in your same situation often ask. The list can then be printed and brought into the visit, or accessed on the iPhone to save answers or record audio during the visit. All of your important information from each visit will be stored on your phone, so you can access it again anytime.

Be Shri Yoga
Be Shri Yoga is a community oriented studio in Old Greenwich offering a nurturing and supportive environment. We offer all levels of classes from yoga basics to advanced. In addition, we offer specialty classes, workshops and trainings. Our teachers are highly trained and expert in addressing the individual needs of each student.  To learn more visit: www.beshriyoga.com

Benefits Check Up
www.benefitscheckup.org
BenefitsCheckUp is a free service of the National Council on Aging. After answering a brief questionnaire, this service generates an individualized report outlining what federal, state or private benefit programs are available to you to apply to given your individual situation.

Breast Cancer
www.breastcancer.org
Breast Cancer is a comprehensive resource for breast cancer and breast health information, including research, news, and online supportive community. Their mission is to help women and their families make sense of the complex medical and personal information about breast health and breast cancer.

Breast Cancer Consultants: www.breastcancerconsultants.com
Dr. Rebecca Kaltman is a board-certified medical oncologist specializing in breast cancer care for the past 10 years. Her service, Breast Cancer Consultants, provides a novel way of providing timely, personalized health information for those faced with a breast cancer diagnosis and struggling to make sense of the complicated array of new information. Online breast cancer consultations are currently offered in Washington DC, Maryland, Virginia, and Pennsylvania with plans to expand to additional states shortly. Dr. Kaltman’s blog and quarterly newsletter, available to anyone who subscribes on the website, provide information about the latest clinical research in breast cancer. Dr. Kaltman strives to empower breast cancer patients to make their own best health decisions through education and compassion.

Breast Cancer Moms
breastcancermoms.com
This website is a collaboration between Stephanie Wagner, breast cancer survivor, and several healthcare experts who, together created a comprehensive resource to meet parenting needs of mothers with breast cancer.

Cancer Care Inc.
www.cancercare.org
Cancer Care provides free counseling and emotional support, information on medical care and treatment, and help with financial aspects of care; this includes referral to online, telephone and in-person assistance.

Cancer Research Institute
www.cancerresearch.org
The Cancer Research Institute awards research grants and fellowships to supporting scientists invested in a new class of cancer treatments called cancer immunotherapy.

Cancer Support Community
www.cancersupportcommunity.org
The Cancer Support Community connects patients to a variety of support services including live chat rooms, treatment decisions counselor, a transitions program for those who have recently completed cancer treatment, and support programs for children and teens.

The Cancer Support Team
914-777-2777
2900 Westchester Avenue, Suite 103, Purchase, NY 10577
www.cancersupportteam.com
The Cancer Support Team provides free, comprehensive support services for individuals and families living with cancer in Westchester County, NY.

Caring Bridge
www.caringbridge.org
Caring Bridge is a platform that allows patients to generate their own website, which can be used for updating friends and family or offering support and encouragement to others undergoing treatment.

CCFAC Yoga
CCFAC Yoga Program provides FREE in home yoga sessions for people diagnosed with triple negative breast cancer. CCFAC is proud to partner with PRIV to provide in home yoga sessions! *Yoga sessions currently available in NYC, LA, Orange County, Austin, and London. Apply here: http://www.carolscrusadeforacure.com/apply-for-yoga-program

Center for Disease Control
www.cdc.gov/cancer/breast
The Center for Disease Control works to protect America from health, safety and security threats. Their breast cancer page is just one of many resources. This page includes latest research, frequently asked questions and other select resources.

Center for Hope
203-655-4693
203-655-3452 (fax)
590 Post Road, Darien, CT, 06820
www.centerforhope.org
The Center helps adults and children living with a life-threatening illness or grieving the loss of a loved one. It offers professional counseling, support and educational programs in an atmosphere of hope and renewal.

Clinical Trials
Clinicaltrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

Cold Cap Therapy Assistance
646-596-3526
shawnaholzer@yahoo.com
Shawna Holzer, LMSW, assists women keep their hair during chemotherapy through cold cap therapy. Cold cap therapy involves the use of special caps, frozen to a very cold temperature, and worn for a period of time before, during and after each chemotherapy treatment. The cooling of the hair follicles prevents chemotherapy toxins from reaching them, preserving the follicles and therefore preserving the patient’s hair. Service Includes: Clothing and Comfort Recommendations, Preparation Prior to Each Session, Support with the Cold Cap Process on Therapy Day, Post-Session Clean-Up and Repacking , Cold Cap Supplies (varies depending on method)

Corporate Angel Network
www.corpangelnetwork.org
Corporate Angel Network works to arrange free travel to treatment by use empty seats on corporate jets to fly patients cross-country if necessary.

EmergingMed.com
www.emergingmed.com
EmergingMed.com is a free and confidential cancer clinical trial matching and referral service.

FacingOurRisk.org
www.facingourrisk.org
Facing Our Risk of Cancer Empowered (FORCE) is a nonprofit organization for women who are at high risk of getting breast and ovarian cancers due to their family history and genetic status, and for members of families in which a BRCA mutation may be present. Our web site can be a helpful resource for anyone who knows she is at risk, who wonders whether she might be at risk, or who cares about the issues and concerns that we face. Contact: info@facingourrisk.org

Foodtidings.com is an online calendar to simplify the process of organizing meals for friends and families in transition. Makes coordinating easy and helps avoid duplication and crossed signals.

Gilda’s Club
212-647-9700
www.gildasclub.org
This free, non-profit program offers networking groups, lectures and workshops and social activities for people with cancer and friends at twenty-seven locations.

Greenwich Hospital
203-863-3704
https://www.greenwichhospital.org/services/cancer.aspx
Greenwich Hospital’s website provides information about local programs and support groups.

Greenwich Home Care
203-489-3333
https://www.greenwichhomecare.com
Greenwich Home Care is a premier, locally owned non-medical home care agency with personal, in-home concierge services, cutting-edge communication technologies, and evaluations by registered nurses.  Services available for a few hours a day, a few days a week or around the clock.

Inflammatory Breast Cancer Research Foundation
877-786-7422
www.ibcresearch.org
The IBC Research Foundation specifically targets IBC and the research to find its cause. Contact: information@mail.ibcresearch.org

Young Women’s Breast Cancer Support Group

Living Beyond Breast Cancer
www.lbbc.org
On this site you will find current and past issues of this organization’s newsletter, transcripts of past educational programs and information about a toll-free survivors’ helpline (888-753-5222), which is staffed by breast cancer survivors. There is also information about a young survivors’ network.

Look Good…Feel Better
800-395-LOOK
Look Good…Feel Better is dedicated to improving the self-esteem and quality of life of people undergoing treatment for cancer. It is their aim to improve their self-image and appearance through complimentary group, individual and self-help beauty sessions that create a sense of support, confidence, courage, and community.

Lynne Haven, M.D.
203-869-4242
www.lynnehavenmd.com
Picosure laser tattoo removal of radiation tattoos for breast cancer survivors.

Medical Fitness Network
www.medicalfitnessnetwork.org
MFN is a free online resource directory for consumers to locate fitness & allied healthcare professionals interested in working with those with chronic disease/medical conditions, including but not limited to: Alzheimer’s, Arthritis, Cancer, Diabetes, Fibromyalgia, Heart Disease, Mental Disorders, Multiple Sclerosis, Parkinson’s, Pre & Postnatal Care, Respiratory Disease, and Stroke. The MFN donates its services as a national database management company to medical, health organizations that do not offer resources for locating fitness & allied healthcare professionals interested in working with their populations.

Memorial Sloan-Kettering Cancer Center
Resources for Life after Cancer: Survivorship Program
646-888-4740
Patients need not have been treated at MSKCC to participate

National Breast Cancer
www.nationalbreastcancer.org
The National Breast Cancer Foundation’s mission is to provide help and inspire hope to those affected by breast cancer through early detection, education, and support services.

National Breast Cancer Coalition
www.breastcancerdeadline2020.org/about-nbcc
The National Breast Cancer Coalition is working toward knowing how to end breast cancer by January 1, 2020. They have many resources, including a detailed blueprint for their 2020 deadline.

National Cancer Institute
800-422-6237
www.cancernet.nci.nih.gov
www.cancer.gov
NCI, a federal government agency which is the largest division of the National Institutes of Health, conducts and supports research, training, dissemination of health information and other programs with respect to the cause, diagnosis, prevention and treatment of cancer, rehabilitation from cancer and the continuing care of cancer patients and their families. The websites and phone line provide information on all of these aspects. Also featured on the NCI site is the cancer information service which seeks to interpret and explain research findings in a clear and understandable manner. Up-to-date information on clinical trials also can be found at www.cancertrials.nci.nih.gov.

National Coalition for Cancer Survivorship
877-622-7937
www.canceradvocacy.org
NCCS is a national advocacy group for people with all types of cancer and those who care for them. The site has hotlinks, legislative news and information on clinical trials. Contact: info@canceradvocacy.org

National Comprehensive Cancer Network
888-909-6226
www.nccn.org
NCCN, which works in collaboration with the American Cancer Society, is a coalition of 21 comprehensive cancer centers with regularly updated guidelines for cancer. It also provides breast cancer treatment guidelines.

National Human Genome Research Institute
www.genome.gov
The National Human Genome Research Institute focuses on advancing human health through genomics research. This page includes updates for ongoing research and educational information for patients.

National Institute of Health
www.nih.gov/health/clinicaltrials
The National Institute of Health Clinical Trials page is a resource to help patients find and enroll in clinical trials.

The National LGBT Cancer Network
Liz Margolies, LCSW, Executive Director
www.cancer-network.org
The country’s first program for all lesbian, gay, bisexual and transgender cancer survivors and those at risk offers information and advocacy for survivors and education on LGBT psychosocial issues for health care providers. Contact: info@cancer-network.org

OncoLink
www.oncolink.upenn.edu
A service from the University of Pennsylvania Cancer Center providing information, updates on treatment and news on research advances. Also offers online support and discussions groups and book reviews.

Patient Assistant Program Center
www.rxassist.org/patients
Patient Assistant Program Center is a database run by pharmaceutical companies to help patients learn about assistance programs to pay for their medications.

People Living With Cancer
www.peoplelivingwithcancer.org
People Living With Cancer is the patient information website of the American Society of Clinical Oncology (ASCO) and provides oncologist-approved information on more than 120 types of cancer and their treatments, clinical trials, coping, and side effects. Additional resources include a Find an Oncologist database, live chats, message boards, a drug database, and links to patient support organizations. The site is designed to help people with cancer make informed health-care decisions.

podcastGOHealth: Cancer 101
www.podcastgo.com
This series of five free podcasts is designed to help answer questions for newly-diagnosed breast cancer patients.

SHARE: self-help for women with breast or ovarian cancer
212-719-0364 or 866-891-2392
www.sharecancersupport.org
SHARE provides information hotlines in English and Spanish, peer-led support groups, public education, and advocacy and wellness programs.

Stamford Health System
877-455-4437
www.stamfordhospital.org
Stamford Hospital’s Women’s Breast Center offers state-of-the-art technology and a warm, personalized approach to breast health. Contact: bennettcancercenter@stamhealth.org.

StoreMyTumor
267-702-5501
www.StoreMyTumor.com
Since 2011, StoreMyTumor has been a trusted tumor preservation service for cancer centers worldwide. StoreMyTumor specializes in collecting, processing, and storing viable tumor for all types of cancers. Having viable tumor helps patients take advantage of the most leading-edge diagnostics and treatments. Patients can store tissue collected from a surgery or biopsies, or fluid from ascites drainage (paracentesis).

Every tumor is unique and contains important information critical to the treatment. However, tumors are not preserved alive by hospitals; instead, they are routinely discarded. We work with University of Pennsylvania Hospital, MD Anderson Cancer Center, Memorial Sloan-Kettering Cancer Center and many other well known hospitals.

Dr. Susan Love Research Foundation
www.susanlovemd.com welcomes all concerned about breast cancer and mid-life issues, and seeks to improve women’s health through research, education and advocacy.

Wendy Lee Fitness
YMCA, Greenwich
wendy.lee987@gmail.com or for class information, lborg@gwymca.org
203-496-1857
Wendy Lee Fitness offers “Strength and Courage” exercise classes that combine regular and moderate activity for both during and after cancer treatment.  These exercises help to preserve muscle tone, joint motion and aerobic stamina.  It can also help to combat many of the treatment related side effects resulting in increase energy, a boost in mood and self-confident.  Wendy offers safe and effective cancer exercise classes that are tailored to everyone’s needs and limitations.  Movements and exercises are targeted to help regain and maintain range of motion, restore physical and emotional balance and generally raise your energy levels…all while having fun!  Classes are held Saturdays, 8:30am – free for members, $15 for non-members

The Witness Project
203-367-4432
This organization recruits and trains African-American breast and cervical cancer survivors to become witness role models. These witness role models provide culturally appropriate educational and empowerment messages in sessions at African-American churches and community centers to promote the practice of breast self-examination, mammography, clinical breast examination and pap test screening.

YWCA of White Plains & Central Westchester
515 North Street
White Plains, NY 10603
914-949-6227
encoreplus@ywcawhiteplains.com

Young Survival Coalition
www.youngsurvival.org
www.pink-link.org together we can help each other!
www.teamtowanda.org visit this site for lighthearted encouragement and support.

Supply Resource

Necessity Bags
Full of items that made surgery, recovery, chemotherapy, pain, illness and loss a little easier for the founders, the thoughtfully packed Necessity Bag is ready to grab and go to help make chemotherapy much easier on those going through treatment.
support@necessitybag.com
www.necessitybag.com

The following resources relate to lymphedema.

National Lymphedema Network
800-541-3259
www.lymphnet.org
The Network provides information on the prevention and management of lymphedema, a chronic condition which can develop as a result of treatment for breast cancer. Included are listings of treatment centers, therapists and support groups.

Stones in Harmony ~ Beautiful Custom Made Medical Alert Bracelets
914-393-4364
www.stonesinharmony.com
It is crucial that first responders/medical personnel avoid the risks of Lymphedema in the Breast Cancer survivor with regard to I.V. Treatment, Blood Pressure, Blood Draw or any medical intervention of this kind. If the patient is rendered unconscious, these bracelets will speak for the patient.

The following shops and sources offer underwear, prostheses and bathing suits for women who have had mastectomies.

American Cancer Society – TLC catalog
800-850-9445

BFFL Bag
BFFL Co was founded in 2011 by Elizabeth Chabner Thompson, MD, MPH, a radiation oncologist trained at Johns Hopkins University School of Medicine and the Harvard Hospital System. After many years of treating cancer patients, Dr. Chabner Thompson realized that these and other patients had requirements beyond just the clinical. They needed to feel cared for, comfortable and empowered. Above all, they needed to be treated in a way that preserved their dignity. BFFL Co’s mission is to develop products and services that improve the patient experience before, during and after hospitalization in a way that preserves dignity and enhances recovery while maintaining the highest ethical standards and transparency.
BFFLBags® are recovery bags packed with medical, personal care and other products designed to help hospital patients recuperate from cancer and other surgeries or treatments. The brightly-patterned mood-lifting bags are made of stain-resistant high-quality pack cloth, and rest upon metal feet, not the hospital floor. Each BFFLBag® is built according to the needs of the patient and was designed to provide mastectomy patients with everything they’d need for a healthy recovery.  http://bfflco.com

Cleaning for a Reason
National organization that provides periodic free housecleaning for cancer patients
www.cleaningforareason.org

Dorothy Stein
707 Post Road, Scarsdale, NY 10583
914-723-6111

Girl on the Go (private, in-home wig services)
www.girlonthego.biz

 

My Secret
145 West 71st Street, New York, NY 10023
212-877-8860 or 800-579-5389

Nordstrom at the Westchester
White Plains, NY 10601
914-946-1122

Nordstrom at the Westfarms
Farmington, CT 06032
860-521-9090

Saxon Kent
185 Boston Post Road, Orange, CT 06477
203-795-3682

Soleil Toile/Lynore
24 Post Road East, Westport, CT 06880
203-454-8688

The following shops and sources offer wigs, turbans, hats and other items or services:

Adam & Eve
772 Central Park Avenue
Scarsdale, NY 10583
914-472-0010

Allura
23 West Putnam Avenue, Greenwich, CT 06830
203-869-1234
www.allurasalon.com

Alternative Hair Solutions
251 Mill Street, Greenwich, CT 06830
203-987-5948
http://althairsolutions.com/

Angels of New York
Call for a private consultation
212-838-7888 or toll-free 866-692-2643
www.angelsofny.com

Bitz-n-Pieces
1841 Broadway at West 60th Street, New York, NY 10023
212-397-0711
www.bitzandpieces.com

Classical Stretch by Essentrics: Breast Cancer Rehabilitation
http://www.breastcancerrehabilitation.com/Rehabilitation.html#.VC2pr6Av4eQ.facebook

Fordham Wigs of Westchester / Ed
271 North Avenue, New Rochelle, NY 10801
914-576-1636

Hope Scarves
Hope scarves share scarves stories and hope with people facing cancer.  Each hope scarf contains a headcover, survivor story & scarf tying instructions.  You can request a free scarf for yourself or send a hope scarf as a gift to someone facing cancer.  Survivors can engage with Hope Scarves by sharing their story and/or scarves to be sent along to someone in treatment. http://www.hopescarves.org

Look Good, Feel Better
800-227-2345
www.lookgoodfeelbetter.org
Program includes workshops designed to help cancer patients look and feel their best while being treated.

Noble Salon
848 High Ridge Road
Stamford, CT 06905
203-322-8483
www.noblesalon.com

Noelle, The Day Spa
1100 High Ridge road, Stamford, CT 06905
203-322-3445
www.noelle.com

Radiant Wrap
www.theradiantwrap.com
theradiantwrap@yahoo.com
707-225-1903
Radiant Wrap is an alternative designer gown made for women with Breast Cancer to wear while undergoing radiation treatments. Our goal is to provide Breast Cancer patients an extra degree of comfort, beauty, wellness and dignity during this difficult time. Radiant Wrap’s are made of soft flowing fabric offered in a variety of colors and patterns. Doctor approved and fully functional for treatment. Designed by a Breast Cancer survivor.

Studio Camille
427 Stillson Road, Suite 204, Fairfield, CT 06824
StudioCamille11@yahoo.com
203-326-0643
www.camillehairstudio.com
Wigs and hairpieces, fitted in a state of the art, private and relaxing environment.

Wig Buyer’s Guide: For those unsure of what to do: www.consumeraffairs.com/wigs/  

The Wig Exchange, 914-412-4884, www.http://www.thewigexchange.org/thewigexchange.org
If you or someone you know will be undergoing chemotherapy and the accompanying hair loss, women in need of a wig can start the process by viewing this online wig salon. The program coordinator, a cancer survivor herself, can explain how to wear and care for the wig and even help arrange a wig fitting, wig stylings and haircuts before and after chemo. All gently used wigs are professionally cleaned and reconditioned, so they’re completely hygienic and look brand new.