Patient Information Resources - Breast Cancer Alliance

Patient Information Resources

These local and national organizations provide breast cancer information, counseling, publications, advocacy, support and referral services.

Association of Cancer Online Resources The Association provides information and support to cancer patients and those who take care of them through the creation and maintenance of cancer-related Internet mailing lists, web-based resources, an email forum and a discussion group.

American Cancer Society 800-227-2345 Website and 24 hour hotline provide information on cancer treatment, early detection, prevention and online services available to cancer patients and their families, including how to talk to children about cancer.

American Life Fund 877-412-0524 provides cancer financial assistance by assisting late-stage patients with the loan or sale of their life insurance policy for immediate funds. 

American Psychological Oncology Society Provides a free helpline to connect patients and families with local counseling services.

American Society for Clinical Oncology (ASCO), People Living with Cancer Offers educational information for patients and families.

Avva Advocate
Avva Advocate is the first comprehensive breast health iPhone app. Any woman following a mammogram screening schedule can use the app to keep track of mammograms and receive regular reminders. It’s free, simple and easy to use, and takes less than a minute to set up. If you’ve been recently diagnosed with breast cancer, Avva Advocate is also here to help. It will guide you through treatment, helping you prepare for doctor’s visits. Avva Advocate will assist you in making a list of questions for your doctor by showing you suggested questions that other patients in your same situation often ask. The list can then be printed and brought into the visit, or accessed on the iPhone to save answers or record audio during the visit. All of your important information from each visit will be stored on your phone, so you can access it again anytime.

Be Shri Yoga
Be Shri Yoga is a community oriented studio in Old Greenwich offering a nurturing and supportive environment. We offer all levels of classes from yoga basics to advanced. In addition, we offer specialty classes, workshops and trainings. Our teachers are highly trained and expert in addressing the individual needs of each student.  To learn more visit:

Benefits Check Up
BenefitsCheckUp is a free service of the National Council on Aging. After answering a brief questionnaire, this service generates an individualized report outlining what federal, state or private benefit programs are available to you to apply to given your individual situation.

Breast Cancer
Breast Cancer is a comprehensive resource for breast cancer and breast health information, including research, news, and online supportive community. Their mission is to help women and their families make sense of the complex medical and personal information about breast health and breast cancer.

Breast Cancer Moms
This website is a collaboration between Stephanie Wagner, breast cancer survivor, and several healthcare experts who, together created a comprehensive resource to meet parenting needs of mothers with breast cancer.

Cancer Care Inc.
Cancer Care provides free counseling and emotional support, information on medical care and treatment, and help with financial aspects of care; this includes referral to online, telephone and in-person assistance.

Cancer Research Institute
The Cancer Research Institute awards research grants and fellowships to supporting scientists invested in a new class of cancer treatments called cancer immunotherapy.

Cancer Support Community
The Cancer Support Community connects patients to a variety of support services including live chat rooms, treatment decisions counselor, a transitions program for those who have recently completed cancer treatment, and support programs for children and teens.

The Cancer Support Team
2900 Westchester Avenue, Suite 103, Purchase, NY 10577
The Cancer Support Team provides free, comprehensive support services for individuals and families living with cancer in Westchester County, NY.

Caring Bridge
Caring Bridge is a platform that allows patients to generate their own website, which can be used for updating friends and family or offering support and encouragement to others undergoing treatment.

CCFAC Yoga Program provides FREE in home yoga sessions for people diagnosed with triple negative breast cancer. CCFAC is proud to partner with PRIV to provide in home yoga sessions! *Yoga sessions currently available in NYC, LA, Orange County, Austin, and London. Apply here:

Center for Disease Control
The Center for Disease Control works to protect America from health, safety and security threats. Their breast cancer page is just one of many resources. This page includes latest research, frequently asked questions and other select resources.

Center for Hope
203-655-3452 (fax)
590 Post Road, Darien, CT, 06820
The Center helps adults and children living with a life-threatening illness or grieving the loss of a loved one. It offers professional counseling, support and educational programs in an atmosphere of hope and renewal.

Clinical Trials is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

Cold Cap Therapy Assistance
Shawna Holzer, LMSW, assists women keep their hair during chemotherapy through cold cap therapy. Cold cap therapy involves the use of special caps, frozen to a very cold temperature, and worn for a period of time before, during and after each chemotherapy treatment. The cooling of the hair follicles prevents chemotherapy toxins from reaching them, preserving the follicles and therefore preserving the patient’s hair. Service Includes: Clothing and Comfort Recommendations, Preparation Prior to Each Session, Support with the Cold Cap Process on Therapy Day, Post-Session Clean-Up and Repacking , Cold Cap Supplies (varies depending on method)

Corporate Angel Network
Corporate Angel Network works to arrange free travel to treatment by use empty seats on corporate jets to fly patients cross-country if necessary. is a free and confidential cancer clinical trial matching and referral service.
Facing Our Risk of Cancer Empowered (FORCE) is a nonprofit organization for women who are at high risk of getting breast and ovarian cancers due to their family history and genetic status, and for members of families in which a BRCA mutation may be present. Our web site can be a helpful resource for anyone who knows she is at risk, who wonders whether she might be at risk, or who cares about the issues and concerns that we face. Contact: is an online calendar to simplify the process of organizing meals for friends and families in transition. Makes coordinating easy and helps avoid duplication and crossed signals.

Gilda’s Club
This free, non-profit program offers networking groups, lectures and workshops and social activities for people with cancer and friends at twenty-seven locations.

Greenwich Hospital
Greenwich Hospital’s website provides information about local programs and support groups.

Greenwich Home Care
Greenwich Home Care is a premier, locally owned non-medical home care agency with personal, in-home concierge services, cutting-edge communication technologies, and evaluations by registered nurses.  Services available for a few hours a day, a few days a week or around the clock.

Hoosier Cancer Research Network
Hoosier Cancer Research Network (HCRN) is an independent not-for-profit contract research organization specializing in early phase, multi-center, investigator-initiated clinical trials. HCRN studies are conducted through a nationwide network of more than 300 academic and community sites. HCRN’s vision and mission is to form unparalleled relationships between academic, community, pharmaceutical, and biotech partners with the goal of advancing cancer research, education, and patient advocacy.

Inflammatory Breast Cancer Research Foundation
The IBC Research Foundation specifically targets IBC and the research to find its cause. Contact:

Inspired Opinions by Schlesinger
InspiredOpinions is an online community owned by Schlesinger Group, a market research company with 15 offices around the United States.  For over 50 years, Schlesinger Group that has provided services to help companies better understand their potential influences in the marketplace as well as customer needs. Inspired Opinions is comprised of people who are interested in participating in paid market research.  Joining our panel of market research participants is FREE and those who qualify are given the chance to be compensated for their time and opinion, while also contributing to the advancement of consumer products and services.

Living Beyond Breast Cancer
On this site you will find current and past issues of this organization’s newsletter, transcripts of past educational programs and information about a toll-free survivors’ helpline (888-753-5222), which is staffed by breast cancer survivors. There is also information about a young survivors’ network.

Look Good…Feel Better
Look Good…Feel Better is dedicated to improving the self-esteem and quality of life of people undergoing treatment for cancer. It is their aim to improve their self-image and appearance through complimentary group, individual and self-help beauty sessions that create a sense of support, confidence, courage, and community.

Lynne Haven, M.D.
Picosure laser tattoo removal of radiation tattoos for breast cancer survivors.

Medical Fitness Network
MFN is a free online resource directory for consumers to locate fitness & allied healthcare professionals interested in working with those with chronic disease/medical conditions, including but not limited to: Alzheimer’s, Arthritis, Cancer, Diabetes, Fibromyalgia, Heart Disease, Mental Disorders, Multiple Sclerosis, Parkinson’s, Pre & Postnatal Care, Respiratory Disease, and Stroke. The MFN donates its services as a national database management company to medical, health organizations that do not offer resources for locating fitness & allied healthcare professionals interested in working with their populations.

Memorial Sloan-Kettering Cancer Center
Resources for Life after Cancer: Survivorship Program
Patients need not have been treated at MSKCC to participate

National Breast Cancer
The National Breast Cancer Foundation’s mission is to provide help and inspire hope to those affected by breast cancer through early detection, education, and support services.

National Breast Cancer Coalition
The National Breast Cancer Coalition is working toward knowing how to end breast cancer by January 1, 2020. They have many resources, including a detailed blueprint for their 2020 deadline.

National Cancer Institute
NCI, a federal government agency which is the largest division of the National Institutes of Health, conducts and supports research, training, dissemination of health information and other programs with respect to the cause, diagnosis, prevention and treatment of cancer, rehabilitation from cancer and the continuing care of cancer patients and their families. The websites and phone line provide information on all of these aspects. Also featured on the NCI site is the cancer information service which seeks to interpret and explain research findings in a clear and understandable manner. Up-to-date information on clinical trials also can be found at

National Coalition for Cancer Survivorship
NCCS is a national advocacy group for people with all types of cancer and those who care for them. The site has hotlinks, legislative news and information on clinical trials. Contact:

National Comprehensive Cancer Network
NCCN, which works in collaboration with the American Cancer Society, is a coalition of 21 comprehensive cancer centers with regularly updated guidelines for cancer. It also provides breast cancer treatment guidelines.

National Human Genome Research Institute
The National Human Genome Research Institute focuses on advancing human health through genomics research. This page includes updates for ongoing research and educational information for patients.

National Institute of Health
The National Institute of Health Clinical Trials page is a resource to help patients find and enroll in clinical trials.

The National LGBT Cancer Network
Liz Margolies, LCSW, Executive Director
The country’s first program for all lesbian, gay, bisexual and transgender cancer survivors and those at risk offers information and advocacy for survivors and education on LGBT psychosocial issues for health care providers. Contact:

A service from the University of Pennsylvania Cancer Center providing information, updates on treatment and news on research advances. Also offers online support and discussions groups and book reviews.

Patient Assistant Program Center
Patient Assistant Program Center is a database run by pharmaceutical companies to help patients learn about assistance programs to pay for their medications.

People Living With Cancer
People Living With Cancer is the patient information website of the American Society of Clinical Oncology (ASCO) and provides oncologist-approved information on more than 120 types of cancer and their treatments, clinical trials, coping, and side effects. Additional resources include a Find an Oncologist database, live chats, message boards, a drug database, and links to patient support organizations. The site is designed to help people with cancer make informed health-care decisions.

podcastGOHealth: Cancer 101
This series of five free podcasts is designed to help answer questions for newly-diagnosed breast cancer patients.

SHARE: self-help for women with breast or ovarian cancer
212-719-0364 or 866-891-2392
SHARE provides information hotlines in English and Spanish, peer-led support groups, public education, and advocacy and wellness programs.

SleevesUp for Breast Cancer through American Red Cross
Blood platelet donations are critical for those suffering from breast cancer, but did you know that less than 10 percent of those eligible to donate platelets do so each year? You can support someone you know fighting breast cancer by tapping your social network and starting a virtual blood drive in their name through the American Red Cross’ SleevesUp campaign. SleevesUp – a first-of-its-kind online tool – allows you to start your own virtual blood drive and encourage colleagues, friends, family members and others across the country to donate blood and platelets. A single donation can supply a full dose of platelets for up to three women fighting breast cancer. Start your own SleevesUp campaign to help increase blood and platelet donations. Learn more at

Stamford Health System
Stamford Hospital’s Women’s Breast Center offers state-of-the-art technology and a warm, personalized approach to breast health. Contact:

Since 2011, StoreMyTumor has been a trusted tumor preservation service for cancer centers worldwide. StoreMyTumor specializes in collecting, processing, and storing viable tumor for all types of cancers. Having viable tumor helps patients take advantage of the most leading-edge diagnostics and treatments. Patients can store tissue collected from a surgery or biopsies, or fluid from ascites drainage (paracentesis).

Every tumor is unique and contains important information critical to the treatment. However, tumors are not preserved alive by hospitals; instead, they are routinely discarded. We work with University of Pennsylvania Hospital, MD Anderson Cancer Center, Memorial Sloan-Kettering Cancer Center and many other well known hospitals.

Dr. Susan Love Research Foundation welcomes all concerned about breast cancer and mid-life issues, and seeks to improve women’s health through research, education and advocacy.

Wendy Lee Fitness
YMCA, Greenwich or for class information,
Wendy Lee Fitness offers “Strength and Courage” exercise classes that combine regular and moderate activity for both during and after cancer treatment.  These exercises help to preserve muscle tone, joint motion and aerobic stamina.  It can also help to combat many of the treatment related side effects resulting in increase energy, a boost in mood and self-confident.  Wendy offers safe and effective cancer exercise classes that are tailored to everyone’s needs and limitations.  Movements and exercises are targeted to help regain and maintain range of motion, restore physical and emotional balance and generally raise your energy levels…all while having fun!  Classes are held Saturdays, 8:30am – free for members, $15 for non-members

The Witness Project
This organization recruits and trains African-American breast and cervical cancer survivors to become witness role models. These witness role models provide culturally appropriate educational and empowerment messages in sessions at African-American churches and community centers to promote the practice of breast self-examination, mammography, clinical breast examination and pap test screening.

YWCA of White Plains & Central Westchester
515 North Street
White Plains, NY 10603

Young Survival Coalition together we can help each other! visit this site for lighthearted encouragement and support.

Supply Resource

Necessity Bags
Full of items that made surgery, recovery, chemotherapy, pain, illness and loss a little easier for the founders, the thoughtfully packed Necessity Bag is ready to grab and go to help make chemotherapy much easier on those going through treatment.

The following resources relate to lymphedema.

National Lymphedema Network
The Network provides information on the prevention and management of lymphedema, a chronic condition which can develop as a result of treatment for breast cancer. Included are listings of treatment centers, therapists and support groups.

Stones in Harmony ~ Beautiful Custom Made Medical Alert Bracelets
It is crucial that first responders/medical personnel avoid the risks of Lymphedema in the Breast Cancer survivor with regard to I.V. Treatment, Blood Pressure, Blood Draw or any medical intervention of this kind. If the patient is rendered unconscious, these bracelets will speak for the patient.

The following shops and sources offer underwear, prostheses and bathing suits for women who have had mastectomies.

American Cancer Society – TLC catalog

BFFL Co was founded in 2011 by Elizabeth Chabner Thompson, MD, MPH, a radiation oncologist trained at Johns Hopkins University School of Medicine and the Harvard Hospital System. After many years of treating cancer patients, Dr. Chabner Thompson realized that these and other patients had requirements beyond just the clinical. They needed to feel cared for, comfortable and empowered. Above all, they needed to be treated in a way that preserved their dignity. BFFL Co’s mission is to develop products and services that improve the patient experience before, during and after hospitalization in a way that preserves dignity and enhances recovery while maintaining the highest ethical standards and transparency.
BFFLBags® are recovery bags packed with medical, personal care and other products designed to help hospital patients recuperate from cancer and other surgeries or treatments. The brightly-patterned mood-lifting bags are made of stain-resistant high-quality pack cloth, and rest upon metal feet, not the hospital floor. Each BFFLBag® is built according to the needs of the patient and was designed to provide mastectomy patients with everything they’d need for a healthy recovery.

Cleaning for a Reason
National organization that provides periodic free housecleaning for cancer patients

Dorothy Stein
707 Post Road, Scarsdale, NY 10583

Girl on the Go (private, in-home wig services)

My Secret
145 West 71st Street, New York, NY 10023
212-877-8860 or 800-579-5389

Nordstrom at the Westchester
White Plains, NY 10601

Nordstrom at the Westfarms
Farmington, CT 06032

Saxon Kent
185 Boston Post Road, Orange, CT 06477

Soleil Toile/Lynore
24 Post Road East, Westport, CT 06880

The following shops and sources offer wigs, turbans, hats and other items or services:

Adam & Eve
772 Central Park Avenue
Scarsdale, NY 10583

23 West Putnam Avenue, Greenwich, CT 06830

Alternative Hair Solutions
251 Mill Street, Greenwich, CT 06830

Angels of New York
Call for a private consultation
212-838-7888 or toll-free 866-692-2643

1841 Broadway at West 60th Street, New York, NY 10023

Classical Stretch by Essentrics: Breast Cancer Rehabilitation

Fordham Wigs of Westchester / Ed
271 North Avenue, New Rochelle, NY 10801

Hope Scarves
Hope scarves share scarves stories and hope with people facing cancer.  Each hope scarf contains a headcover, survivor story & scarf tying instructions.  You can request a free scarf for yourself or send a hope scarf as a gift to someone facing cancer.  Survivors can engage with Hope Scarves by sharing their story and/or scarves to be sent along to someone in treatment.

Look Good, Feel Better
Program includes workshops designed to help cancer patients look and feel their best while being treated.

Noble Salon
848 High Ridge Road
Stamford, CT 06905

Noelle, The Day Spa
1100 High Ridge road, Stamford, CT 06905

Radiant Wrap
Radiant Wrap is an alternative designer gown made for women with Breast Cancer to wear while undergoing radiation treatments. Our goal is to provide Breast Cancer patients an extra degree of comfort, beauty, wellness and dignity during this difficult time. Radiant Wrap’s are made of soft flowing fabric offered in a variety of colors and patterns. Doctor approved and fully functional for treatment. Designed by a Breast Cancer survivor.

Studio Camille
427 Stillson Road, Suite 204, Fairfield, CT 06824
Wigs and hairpieces, fitted in a state of the art, private and relaxing environment.

Violets Are Blue  
Now, more than ever, this is your time to be comforted, to be cared for, to be loved. BeLoved is our intentional act of care for you in your greatest time of need. We know firsthand that undergoing cancer treatment needs extra care and nurturing. Our BeLoved line is purposefully designed with simple, natural ingredients that will soothe and comfort chapped, tired skin and give you the love and nurturing you need to feel restored and revived. Use code BCAORG for 20% off.

Wig Buyer’s Guide: For those unsure of what to do:  

The Wig Exchange, 914-412-4884, www.
If you or someone you know will be undergoing chemotherapy and the accompanying hair loss, women in need of a wig can start the process by viewing this online wig salon. The program coordinator, a cancer survivor herself, can explain how to wear and care for the wig and even help arrange a wig fitting, wig stylings and haircuts before and after chemo. All gently used wigs are professionally cleaned and reconditioned, so they’re completely hygienic and look brand new.